junø @juno@pixie.town

When you’re allergic to everything and nothing all at once…. You may have MCAS.

Suddenly allergic to alcohol? Certain foods making you sick? Unexplained swelling and rashes? You may have MCAS.

Did you know you can experience anaphylaxis without ever having throat or facial swelling? I certainly didn’t! My first episode of anaphylaxis started in my gut and my heart - and I genuinely thought I had the flu.

I suffered for two days with unrelenting nausea and diarrhea, tachycardia, chest pain, shortness of breath and sweating. I lay in my bed desperately trying to force fluids down - but my throat was sore and swallowing had become difficult.

I finally relented and went to the ER - largely due to dehydration. Imagine my shock when the triage nurse took one look at my throat, stabbed me with Epi and whisked me into a code room.

I genuinely had no idea I was experiencing anaphylaxis. The throat issues felt just like strep and/or a bad flu. It happened so slowly that I didn’t even realize.

I wrote this article as a primer into the wild world of mast cell disease. These cells are everywhere in your body - contain over 200 mediators and can wreak havoc in a million different ways.

I hope it will help people better understand the condition - and I plan to write two more pieces which will explore in greater detail how to get diagnosed, how to treat it and (perhaps most importantly) how to learn to live with the constant threat of anaphylaxis.

https://www.disabledginger.com/p/when-youre-allergic-to-everything

#CovidIsAirborne #CovidCautious #CovidIsNotOver #CleanAir #WearaMask #Disability #LongCovid #Ableism #Denial #CleanAir #Pandemic #PublicHealth #InfectionControl #Eugenics #SafeHealthcare #N95 #Respirators #MasksWork #MaskUp #Spoonie #Discrimination #Dysautonomia #mecfs #pots #mcas #communitycare #wearamask #chronicillness #keepmasksinhealthcare #mastcells

okay so, I've got my goals covered an my plans are in motion and even tho I've got some to spare, I've set them aside because I could still be kicked out any day. (haha, fun /s).

but this is still my birthday month and... I haven't really gotten me anything besides something I really really needed (like walking shoes... and walking shoes again...) forever. so I'll leave my links up this month and I'll use anything I get to get me something nice for my birthday!

links:

ko-fi - accepts paypal and stripe.
stripe (USD) - (for those that prefer not using paypal)

hashtags

#mutualAid #transCrowdfund #mutualAidRequest #blackMutualAid #boostPlease
@mutualaid

Die Redewendung "man freut sich tierisch" impliziert, dass es von der Gesellschaft als unmenschlich angesehen wird sich sehr zu freuen

Sexuality and gender identity are hard to figure out, Blahaj is soft to cuddle.

remember: The Closet isn’t privilege, passing isn’t acceptance, assimilation isn’t safety

every single one of us in trans fedi is traumatized by our experiences of having every moment of our lives turned into a battle for our own existence, and the way that collective trauma plays out within our queer communities is an age-old story, one that our elders solved during the AIDS crisis and we need to learn from.

there is so much more we can all be doing for each other to help ourselves and each other thrive and to help our community thrive. every single one of you needs to read this treatise by the Jane Addams Collective.

https://theanarchistlibrary.org/library/the-jane-addams-collective-mutual-aid-trauma-and-resiliency

Oh, dear. Here we go.

I get it, a woman boxer from Algeria gets smeared as being trans. That her elevated testosterone gives her an advantage. You know what really pisses me off when I see people rushing to her defense, even from within trans circles? That it's "she isn't even trans! See how anti trans sentiment hurts even cis women!"

It wouldn't even matter if she was. It wouldn't matter if pure testosterone dropped from her ears. It wouldn't matter if that gave her an advantage.

Why? Because this isn't the Kid's Participation Trophy League where everybody ends up on the podium at the end of the day. This is the Olympic Games, where top athletes compete. They are meant to be the most extraordinary athletes of each country.

Remember Phelps, who is genetically uniquely suited to be a swimmer, and had several proven biological advantages over his competitors? Did we give a shit? No, he was even hailed as extraordinary athlete for it.
Basketball players aren't disqualified for being taller than average, they are picked for it. In every discipline, the athletes with a biological advantage for it are encouraged, selected, specifically promoted to build on that.

Except women. Except if your melanin makes you different than ham pink. Except if in your past what a doctor jotted down at a glance didn't align with who you are.

This is the Olympic Games, not the Average Everyone Games. So flattening the defense of an Algerian boxer to "but she isn't trans" really sits badly with me, because what you're telling me is, being successful while trans needs further justification. That you see a trans person as lesser than a cis person, and being cis means you're beyond suspicion while being trans carries a burden of proof. You're telling me that you see us as being different from what we say we are - a man in a dress, a lesbian playing at being a man, someone who needs to pick a side already.

I am a desirable and worthwhile presence in the lives of those I love.

Even when it's hard to believe.

Human weddings have a Best Man, but goblin weddings have a Worst Man. The idea is that even an uncouth trash-heap of a man is going to seem like a catch if he is standing next to someone even worse.

If the bridegrooms family really want the wedding to happen they will appoint their most disagreeable relative, provide him with all the intoxicants he could ever want and then some, and have him show up to the wedding drunk off his ass and smelling of turpentine.

It is considered an honor to have a Worst Man show up at your wedding, and families have been known to get offended by his absence. This doesn't mean that the Worst Man himself is a welcome presence as goblins have been known to get a bit too into their role for the sake of realism.

After the traditional speech in which the Worst Man is expected to make a pass at the bride, facetiously extolling his virtues compared to the groom he is generally expected to fade into the background, cause a scene or two to keep the party lively and then leave quietly after he's had his fill of the buffet. If his antics start wearing thin, the goblin children may be tasked to drive the Worst Man away with sticks, stones and the occasional knife.

As goblin society has grown more progressive, there's increasingly been occurrences of a Worst Lady being invited alongside or instead of a Worst Man (though having both at the same wedding is not recommended by most goblin wedding guides as they've been known to get competitive and/or romantically involved and either of those outcomes may prove disastrous for a wedding).

At lesbian ceremonies, both brides may opt to recruit a Worst Lady from their friend-group if their respective families refuse to provide one. Being appointed a Worst Lady by your friend is seldom flattering but usually taken in good spirit. There is a saying in goblin culture that lesbian weddings are two for the price of one, considering how often the Worst Ladies will opt to marry each other in a bonus ceremony.