I'm going to share this again, so new to Fedi people can see that there is a big community of people with chronic illness here.
There is also a some groups** you can follow here on the Fedi:
@mecfs
@chronicillness
@disability
@longcovid
If you follow these groups, you'll get any toots from people* who include this account in their toots when they are sharing #MECFS posts etc. You can add this to your toots about mecfs etc too.
*including researchers, you are very welcome!
**Groups are a free tool that anyone can use to set up for other illnesses, etc.
#MECFS #ChronicIllness #LongCovid #Disability #Fibromyalgia
meta, colonialism
This isn't a community. This is a big tent.
Well, if that's your opinion of this place, then don't blame us for thinking you're a clown - because you're already treating it like a circus.
meta, colonialism
@xenophora @joepie91 @thufie big "when all you have known is privilege equality feels like oppression" energy in that thread. watching people fluster because they've never seen communities meaningfully and effectively exercise agency around what gets pushed at them is really something.
Hi all. Can any other #blind people recommend an #accessible #mastodon app for #iOS? I'm trying to find a good one that works well with VoiceOver.
Wow. This needs to be read by everyone who joined Mastodon in the last week: https://www.hughrundle.net/home-invasion/
Please do not ask marginalised people to do the work of teaching you how to be a better ally, especially if that's not explicitly their job or business. Some of us may choose to do it, but it's on our own terms, not something to be demanded of us just by virtue of existing.
There are more than enough resources out there for you to learn on your own. Plenty you can observe. You don't need us hand-holding you through your every misstep. We've got our own things to do!
"Please teach us because the only way we can learn is if you tell us where we got it wrong" is not reasonable.
Research on Fedi
Are you on an academic/scholarly/sciencey Fedi server?
Does your server have a policy regarding researching its users?
This is Scholar's, for example:
https://scholar.social/terms#research
We should be having this conversation about user consent, expectations and instance policies *now* before you end up having to explain why your cool cool paper about Fedi is getting retracted
In the process of moving to @joepie91. This account will stay active for the foreseeable future! But please also follow the other one.
Technical debt collector and general hype-hater. Early 30s, non-binary, ND, poly, relationship anarchist, generally queer.
- No alt text (request) = no boost.
- Boosts OK for all boostable posts.
- DMs are open.
- Flirting welcome, but be explicit if you want something out of it!
- The devil doesn't need an advocate; no combative arguing in my mentions.
Sometimes horny on main (behind CW), very much into kink (bondage, freeuse, CNC, and other stuff), and believe it or not, very much a submissive bottom :p
My spoons are limited, so I may not always have the energy to respond to messages.
Strong views about abolishing oppression, hierarchy, agency, and self-governance - but I also trust people by default and give them room to grow, unless they give me reason not to. That all also applies to technology and how it's built.