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One of the hardest parts of chronic illness is that you can do everything “right” & still have a setback.

You can rest, eat healthy, manage stress & take all your meds & still have a horrible flare.

The loss of control is painful, and a big part of why folks are afraid of people with disabilities

The non disabled need to believe that they can “healthy living” or “try harder” their way out of disability.

That they’re the exception. That we have failed because we didn’t really “want” to get better.

They can’t fathom that sometimes it doesn’t matter what you do, you still get sicker

(The idea of predefined 'cloud services' being cheaper originates in the idea that you don't need to hire dedicated staff and can share it with other customers. This is of course a) also true for managed hosting, b) completely distorted by things such as vendor lock-in, and c) irrelevant when you are a literal government-sized organization)

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There's this argument that European cloud providers just can't offer the same breadth of services as something like AWS, and it really annoys me because what AWS offers is merely a subset of what dozens of managed hosting providers offer *and have been offering since before AWS existed*.

When you buy this stuff from a managed hosting provider, they do whatever they have to and hire whoever they need to, to provide you with the service you need. Having a fixed set of predefined services in a fancy control panel (like AWS) is not actually better than this!

(And it's not cheaper either.)

#RadicalRoutes is a network of radical housing co-ops, workers co-ops and social centres, whose members are committed to working for positive social change.

The next Gathering is this weekend,
May 9-11th, camping at Highbury Farm, Monmouthshire, overlooking the glorious Wye Valley.

radicalroutes.org.uk/next-gath

Then Aug 15-17 : Wild Peak

#SamosasForSocialChange

Bronnen bij NS geven aan dat er geen overeenkomst is bereikt over een nieuwe CAO en dat vakbonden zich gaan voorbereiden op stakingen. Wordt vervolgd.

Internal sources at NS are saying that an agreement on a new collective bargaining agreement couldn’t be reached. The unions are now preparing for strikes. To be continued.

it still frustrates me to no end that the only reason why residential networking is complicated is IPv4

and IPv6 is almost three decades old

instead of all this bullshit with port forwarding, NAT punching, and other shit, you should be able to just know your own public IP address and send it to someone else to connect directly to you, but you can't on IPv4. instead you have to deal with bullshit

Cool piece of industrial design - a step built into the seat frame to allow shorter people better access to the overhead bins

@joepie91 Most car chargers you can use a paperclip to bypass payment on, by shorting either the 5v rail or the 12v rail that controls the relay, and usually don't have security alarms on the way to access that relay.

Yes, you have to access it destructively. Yes, it's probably not safe. But it's there.

@joepie91

AGI, actually stands for A Guy Instead (of a computer).

Not all data are equal

The health *care* system does not create health *research* quality data

These are NOT the same thing

And just having a lot of lower quality data does not magically transmute it into good quality data somehow

And you wouldn't want health *care* resources spent on health *research* because of how incredibly inefficient it would be to re-train every single care provider to have a 2nd focus on research

Just run a goddamn RCT, there's no free lunch, jesus fuck

I just heard this from my screen reader after editing a post, and... What? Kaliah, Content warning: Long post, in 10 seconds, @Kaliah, Unlisted article 21 of 21. I posted 10 seconds into the future? Shit guys, I'm a freaking time traveler. I didn't realize. Check that out

Let's start a thread about this again. What's something that 'everyone knows' in your field, but that would probably shock the general public if they learned about it? :boost_requested:

I'll start: every 'magical' and 'innovative' service from a tech company that works better than you would expect from a computer, only does so because there's a lot of unnamed people behind the scenes papering over all the broken stuff and manually fixing things. The company just isn't telling you that.

re: venting, paid software, piracy, etc. 

@joepie91 one example of paid software that isn't "every single user must pay" is DeArrow. it's actual purpose can be found on dearrow.ajay.app/ but upon installation, you are greeted with a $1 paywall (that gives a license key), with an option to get free access after waiting an amount of time (the amount of time has varied, and is currently about 12 hours). and a trial of course.

that's not the only method to get access. other semi-official methods include messing with the extension to bypass the paywall, using other people's license keys (like mime: Fh0Lk-df841), and third-party key generators (with key gen music). they'll all pretty much exist forever since the developer's intention isn't to price anyone out but to strongly encourage giving some money (so that the dev has money to continue working on the extensions), and the regulation around license keys is explicitly none ("Sharing is caring" is below the license key when viewed in the extension, dev statement, etc.)

in the end, everyone with or without the ability to pay gets access, and the dev gets money from those who have paid, and is a sizeable chunk of money received by the dev. (pie chart from discord guild and 2023)

It crosses my mind that some fascist ressentiment is from people who literally feel entitled to flying cars.

They grew up with fantasies of metal and plastic and glowing screens, and they've tried to realize those fantasies. When they finally realized they were allegories about industrialization and colonialism and slavery, they decided that's what they wanted.

The joke about the Torment Nexus isn't so funny when you realize they literally advocate torture.

Anybody in my network ever used an inflatable kayak? We're looking at a really good deal, if it's a good sort of boat.

Relatedly: pay attention to which brands have *exactly* 30% recycled plastic content... they're the ones that are trying to do the absolute bare minimum they are required to.

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chronic illness and pain is a lot like heffalumps. hard to explain to people, but if you know, you know. maybe not the extent. but the dread and exhaustion. and also the incredulity.

(reposted because somehow i erased all the answers so far, sorry!)

to all the chronically ill and disabled folk in fediland:

how do you feel about posting about how you feel? i do post stuff about illness sometimes, but i also often worry that i'm just boring people or whinging, and that no one cares if i'm incapacitated (again/still). but it's such a MASSIVE part of my life (sigh), so sometimes i feel like i'm ... idk ... not lying? but ... something ... by glossing over it. but equally, i don't want to dwell, because it's not great for anyone to get mired. and it might be boring (and it will be repetitive).

anyway just interested to see what others think.

(boost if you like, but you don't have to.)

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