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usa autism database thoughts from a medical record manager (a thread) 

as much as i appreciate activism and folk raising awareness despite being outside the healthcare industry: lets talk about the practicalities of building a massive 'research database' of medical records for a minute.

lets also look at *why* hippa wont save us and *why* the obama rules about data sharing are bullshit and *why* neither of these things are what you think they are.

disclosure 1: im an industry insider and know exactly wtf they need to do to make their database of autistic folk's medical records a reality. its actually kind of 'easy' and very much legal.

disclosure 2: im autistic and [invisibly] disabled. i have a vested interest in this topic, on many levels.

a thread

1/10

abolish instagram. destroy it. burn it. hack it to pieces with sharpened spoons and eat it. use literally anything else to organise I beg you

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re: hot take, social media 

@CosmickTrigger I wouldn't extrapolate it to that. The internet itself is quite decentralized, and the issue I'm describing is happening at the point of centralization that's built on top of that.

It relates much more to the incentives of capitalism than it does to the internet, as either a concept or a design.

uspol, actionable personally 

If you have a formal autism diagnosis (completed or in progress), and you are in the US, now is probably the time to call around your healthcare providers and ask and/or pressure them to delete it from your medical records. Optionally keeping a paper copy yourself.

The government wants to go digging in private medical records to put autistic folks in a registry (that is most likely going to function as a kill list), and it'll probably take them a small amount of time to start doing so, but they probably won't actually be stopped from doing it - so you're going to want to make sure your name doesn't pop up in that process.

One guy is using an excavator to move dirt, two people are raking it flat, and the crows are flapping around to check the dirt for grubs. Helping!

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There's currently some landscaping being done outside our apartment. The workers include three people and two crows

so we have The Car, arguably the most famous: masto.doskel.net/@doskel/11388

and @domi's arpa instance

I remember reading about an ESP32 project, not sure if that is done yet

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is there an overview post of all the weird hardware/OS/network fedi instance deployments?

if not I should write a blog post

Edit: yes eloydegen.com/blog/posts/weird

uspol 

"Creating a registry of autistic people", like the US government under Trump is wanting to do... that is what you do when you want to murder an entire demographic. That is the only reason for it.

I don't mean that metaphorically. I mean literally murdering them, directly or indirectly.

Even if you aren't in a country where elections will be held very soon (Canada, Australia, Singapore, Philippines) it's worth knowing just about 9 out of 10 people globally want more climate action.
This is drowned out by propaganda from the fossil fuel industry and their paid shills.
#climate #ClimateCollapse #environment
theguardian.com/environment/20

pspol, uspol, genocide 

I feel like another thing I hear from liberals pretty often is:

Biden didn't start the genocide

Because they have mostly shifted from "it's not a genocide" from what I can see these days. This is still a good post though. Stole it from someone else who posted it without alt text or CW.

Covid-19 Poll 

As of April 2025, how many times have you had covid, do you still mask, and did you get at least one round of vaccinations? :boost_ok:

evergreening this meme because it's great and because people who didn't see it before won't get my last boost

I mean the real reason is probably that so much of the "espresso community" considers themselves an exclusive Rich Coffee Person Club and thinks themselves above something as serf-like as grinding beans by hand. Get the nicest and most convenient equipment or get out. I hate it.

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I actually asked on the Reddit espresso community. Got downvoted to heck and my suspicions were confirmed. Pretty much everyone in the comments can't imagine why someone wouldn't be able to spend an additional couple hundred dollars to save themselves 2 minutes of mild physical effort in the morning. They're all screaming about convenience and speed and how they just can't be bothered to put in a bit of effort so they'd rather spend a fortune. And so they can't see why they'd ever suggest a hand grinder even if someone specifies they're on a budget.

What a bunch of privileged pricks.

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Internet search in…

1990: ask people you know for their FTP server address

1995: scroll through twenty pages of Altavista results

2000: ten blue links

2010: ten blue links below ten ads

2020: one useful link to Wikipedia below the fold, all ads above

2024: AI summary followed by ads followed by a Wikipedia link

2025: AI summary followed by AI summaries of ads followed by a Wikipedia link behind an AI summary

2026: ask people you know for their archive torrent address

@WeirdWriter From what I can tell, adaptive mode increases the contrast and font size; markup-wise, it changes the form elements so that the label is attached to the checkbox input through a for= reference, rather than nesting the checkbox inside of the label.

Both approaches should be valid and equivalent to connect the two elements, but I wonder now if some screenreaders handle these cases differently somehow.

(If I can find the time, I'll try setting up a screenreader to see what it makes of it...)

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