usa autism database thoughts from a medical record manager (a thread)
as much as i appreciate activism and folk raising awareness despite being outside the healthcare industry: lets talk about the practicalities of building a massive 'research database' of medical records for a minute.
lets also look at *why* hippa wont save us and *why* the obama rules about data sharing are bullshit and *why* neither of these things are what you think they are.
disclosure 1: im an industry insider and know exactly wtf they need to do to make their database of autistic folk's medical records a reality. its actually kind of 'easy' and very much legal.
disclosure 2: im autistic and [invisibly] disabled. i have a vested interest in this topic, on many levels.
a thread
1/10
abolish instagram. destroy it. burn it. hack it to pieces with sharpened spoons and eat it. use literally anything else to organise I beg you
re: hot take, social media
@CosmickTrigger I wouldn't extrapolate it to that. The internet itself is quite decentralized, and the issue I'm describing is happening at the point of centralization that's built on top of that.
It relates much more to the incentives of capitalism than it does to the internet, as either a concept or a design.
uspol, actionable personally
If you have a formal autism diagnosis (completed or in progress), and you are in the US, now is probably the time to call around your healthcare providers and ask and/or pressure them to delete it from your medical records. Optionally keeping a paper copy yourself.
The government wants to go digging in private medical records to put autistic folks in a registry (that is most likely going to function as a kill list), and it'll probably take them a small amount of time to start doing so, but they probably won't actually be stopped from doing it - so you're going to want to make sure your name doesn't pop up in that process.
One guy is using an excavator to move dirt, two people are raking it flat, and the crows are flapping around to check the dirt for grubs. Helping!
so we have The Car, arguably the most famous: https://masto.doskel.net/@doskel/113884673390275625
and @domi's arpa instance
I remember reading about an ESP32 project, not sure if that is done yet
is there an overview post of all the weird hardware/OS/network fedi instance deployments?
if not I should write a blog post
Edit: yes https://eloydegen.com/blog/posts/weird-fediverse-instances/
Even if you aren't in a country where elections will be held very soon (Canada, Australia, Singapore, Philippines) it's worth knowing just about 9 out of 10 people globally want more climate action.
This is drowned out by propaganda from the fossil fuel industry and their paid shills.
#climate #ClimateCollapse #environment
https://www.theguardian.com/environment/2025/apr/22/spiral-of-silence-climate-action-very-popular-why-dont-people-realise
pspol, uspol, genocide
I feel like another thing I hear from liberals pretty often is:
Biden didn't start the genocide
Because they have mostly shifted from "it's not a genocide" from what I can see these days. This is still a good post though. Stole it from someone else who posted it without alt text or CW.
I mean the real reason is probably that so much of the "espresso community" considers themselves an exclusive Rich Coffee Person Club and thinks themselves above something as serf-like as grinding beans by hand. Get the nicest and most convenient equipment or get out. I hate it.
I actually asked on the Reddit espresso community. Got downvoted to heck and my suspicions were confirmed. Pretty much everyone in the comments can't imagine why someone wouldn't be able to spend an additional couple hundred dollars to save themselves 2 minutes of mild physical effort in the morning. They're all screaming about convenience and speed and how they just can't be bothered to put in a bit of effort so they'd rather spend a fortune. And so they can't see why they'd ever suggest a hand grinder even if someone specifies they're on a budget.
What a bunch of privileged pricks.
Internet search in…
1990: ask people you know for their FTP server address
1995: scroll through twenty pages of Altavista results
2000: ten blue links
2010: ten blue links below ten ads
2020: one useful link to Wikipedia below the fold, all ads above
2024: AI summary followed by ads followed by a Wikipedia link
2025: AI summary followed by AI summaries of ads followed by a Wikipedia link behind an AI summary
2026: ask people you know for their archive torrent address
@WeirdWriter From what I can tell, adaptive mode increases the contrast and font size; markup-wise, it changes the form elements so that the label is attached to the checkbox input through a for= reference, rather than nesting the checkbox inside of the label.
Both approaches should be valid and equivalent to connect the two elements, but I wonder now if some screenreaders handle these cases differently somehow.
(If I can find the time, I'll try setting up a screenreader to see what it makes of it...)
Technical debt collector and general hype-hater. Early 30s, non-binary, ND, poly, relationship anarchist, generally queer.
Sometimes horny on main (behind CW), very much into kink (bondage, freeuse, CNC, and other stuff), and believe it or not, very much a submissive bottom :p
Feel free to flirt, but if you want to actually meet up and/or do something with me, lewd or otherwise, please tell me explicitly or I won't realize :) I'm generally very open to that sort of thing!
Further boundaries: boosts are OK (including for lewd posts), DMs are open. But the devil doesn't need an advocate; I'm not interested in combative arguing in my mentions. I am however happy to explain things in-depth when asked non-combatively.
My spoons are limited, so I may not always have the energy to respond to messages.
Strong views about abolishing oppression, hierarchy, agency, and self-governance - but I also trust people by default and give them room to grow, unless they give me reason not to. That all also applies to technology and how it's built.