Why the cancellation of the new NICE guidelines matters, MECFS
To people outside the #MECFS community who might not know why this matters... The old guidelines included so-called treatments (GET - Graded Exercise Therapy & CBT) that have been proved, at the least, to do nothing, but at the worst, have caused serious damage to a lot of patients with ME. The new guidelines acknowledged & removed them.
By not publishing the new guidelines, doctors etc, can continue to push these damaging treatments. The DWP can continue to push patients to undertake these treatments and deny anyone who refuses, their benefits. And research into ME continues to be stymied, by both stopping people researching the physical causes of ME, and stopping investment in research.
We thought we were finally seeing the end of the BPS (biopsychosocial) model that GET & CBT are based on. Instead, they are continuing to maintain their control over people with ME.
This will also impact on people with #LongCovid, which has a lot of similarities to ME, and who the BPS lot, are now going after.
it's a good video tho, nicely explaining the physics behind falling forces/slowdown https://www.youtube.com/watch?v=WyExE2qH4Fs
fucking hell I can up the video settings to best with 20 chunks render distance and still be at 150+ fps except close to my tree farm lol
@extinct@redroo.ml ah I see, yeah the "public business information" section isn't filled in on my account, and also unchecked 'Show phone number on receipts and invoices'
the only thing shown in the top left corner of my invoices is the logo and the contact email, maybe it's a US thing to have the state/country there always but still very odd
@stapper ah no, it was memtesting that showed the ram was messed up, with loooots of errors
⚠️ READ BEFORE FOLLOWING ⚠️
if i don't know you from elsewhere (under same nick), shoot me an introductory DM first (following back is fine)
I do anarchist tech stuff and run free services at https://pixie.town
I program, solder rgb led thingies, and fly fpv quadcopters
en: they/them
nl: die/dies (langzaldieleven.nl)
“i don't trust like that”
not a furry, actually
Extreme coffee-out-of-a-wineglass Energy
something something trans list stop scraping bios
and now a word from our sponsors (screenreader warning it's zalgo)
T̀ͧ̓̑͐̓̍̂̏҉̴̷͚̦̤͙̜̖͙̝͟ợ̵͈̗̮̲̥͕̼̩̭̞̙͉̆ͮͧ̉̒́̑̍̋ͭ̌ͭ̒̉́̕͟ ̐̅̈́ͯ҉̸̴҉̹̟͕̖̠̟̤͕į̸̙̮͓̤̠̘̫̦̥̣̻͚̣̎ͭͯ̋̉͝n̔̄̏̈́̃̇͛̂̋̇̐́͘͝҉͙͔̠͇̖̤̹̭̱̪v̴̴̛̘̠̰̹͚̱͉̳̘̥̞̳̪͈ͥͭ̅ͥͦ̀͛̔̃̃̎͋̋̎͐͌ͪ̚͟͢ͅö́́̎ͬ̔͑̆̃̅̒̿ͪͯ̓͏̞̱̜͍̬̗̹̫̝̪͓͕̳̬̰͘͝kͥ̒ͣͦ̌͛̃͒̀̿ͣͪͤͬ̍ͮ̚̚̕͝҉̹̰̟̰̻̻͍̠̗̳̬̬̬̞̟̹̩͇́͜ẹ̴̡̨̱̹͍̯̱̗̗͍̬̐ͣ̑͑̐̓̈̑ͥ̅́̇̃͒̀̃̂́ ̨̛͖̬͇̣͔̼̥̬̝̥̣̭̝̪͎͈̌̅͆̉̀͘͜ͅẗ́̄͊̌̍̆́̿́̊ͣͮ̅ͥͩ̔̏͏̧̳͎̥͈ͅh̴̴͇̻ͧ̍̐̈͐̎͛́̀̽̃̒̔͢͢ȩ̸̶̶̟̗̮̺̭̥͕̭͎̺̙͎̖͔ͪ̑͛̓̅ͪ̄́ͧ͡ͅ ̡̧͇̤͚̻̬͉͔̥̫̟̙ͮͩ͌̿́̆͋͜h̵̨̭̰͎̭̱͊͒́͒͆̎ͮ̈́̆ͪͧ̚͞î̛̦̞͓͖̭͈̮͔̩͙̱̖̞̳̥̦̩ͭ̂̏͒ͨ̃̿̽̓͑ͫ̕͝͡vͧ͋ͪ̌̂̑́͌̂̒͑ͮ̋̂ͫ̈́҉̹͜͢ȩ̡̖̯̞̺̭̗͔͇̻̤̼͈̙̞͉͙̈ͤ͊ͨ̀̆͆͒̓̄̿ͭ̃̚͜͝͡-̶̪̪̠̝̜̯̜̹̭̯͎͍̲̱͉ͪ̏͒̊ͫ̀̈͘͡m̸̪̘͙̰͚̗̳͕̟̖̿̌͐̔̐̈̽̃ͯ̅͢ͅͅi̸̷̧̛͍̝̦̫̮̤̐͑͗̏ͬn̡̨͆ͩͤͫ̔̈́̈́͊͐̂͛̀̚͞҉̜͍̝̰̱͚̜̹̞̝̞͈d̢̫͕͚͕̥̰̝͆͗́ͨ͑̈́̓͜ ̡̩̜͎̳͎͂̓ͫͭ͐̀͡ȑ̷ͭ̑ͪͭ͋͢͏͕̳̟͜ͅͅe̴͌̅ͣ̾͒̔́̊̔ͭ̅̄̇͏͎͉͈̤̙p̀ͥ̈ͨͩ͛ͥͣ͗̄̈́̚҉̢͔͉͍̹̮͉̺r̵̸̡̩͎̱̟̺̟̞͈̯̯̪̹͂́ͣ̐͑̒̒̀ͧͩ̿ͮ̕͞ě̵̡̱͈̜̯̳͍̝̦̜̫͈̜̗̘̪̪̓͆͑͋ͮͯͪ̅̂͐̔̆̃ͫ͑̾͒͢ͅş̶͓͉͚̜̪̜͓̘̻̃̔ͨ́̀ͅẻ̵͇͈̮̝̠͖͍̫͉͓̪̠͔̬͕͛̊͐̎̓̽ͫ̌ͧ̅̿́͘n̛͚̺͈͍̰͉͙̤̘̺͖͉̤͖̈͑͑̍̅ͪ̎͂́ͦ̒ͣ̋̆̄̄̍̃̊͟t̵̛͙͚̥͇̫̻̞͖͕̰͈̩̰̱͉ͣ̃ͫ̋̍̈ͥ͗̎ͭ͋͜i̵̡̤͇̣̰̦̟̭̮̩̲͔̭̟̖̹̙ͥ̆̋ͫ̓͌̒̾̍̄̾̎̂͂̏̇ͩ̚͢n̶̮̹̤̻͈̙͔͎̦̟ͫ̀͌͛̋̌̽̀̓̂̕g̷̣͖̠̩͈̲̥͍̦̘̺̏̍͛͋̎͛͒ͪ̇ͮ͠͝ ͦ͂́̿͐̅̌̊̌̉̍̀҉҉͈͖̮̩͎̮̬͖c͖̬̠̫̠̫̗̉̾͋͒̏̄̈́ͬ̊̓͘͝h̴̷̨͉͖̱̗̪̣͕̮͓͕̺͖͈͙̥̬͓̟ͣ̏̀͐̀́̍ͪ̋͒͐ͪ͐́̕a͍͈͉͎̥̠͍͛ͭ͛̃ͫ͒͋́͟ö͙̻͔̙͖̰́̋̑́͜s̶̸̫̖̫͇̣̻̺̹͔ͧ͐̂̈́ͮ͋̌͠.̰̯̞͎̗̺̠͔̫͍̖ͮͦ̒̏̈̾ͭͧ̉͘͢͠