autism, gatekeeping, hashtags, long >1k 

The other day I made a post about autism and I tagged @actuallyautistic at the end. Later, I've seen a pinned post in someone's profile saying that "actually____" hashtags mean that one believes that people not officially diagnosed are not actually ____ (autistic in this case). They probably have blocked me even though I don't believe that. I believed that both the hashtag and the group name mean that one has first hand experience as an autistic person (as opposed to being a non autistic person talking in their name, as it often happens with some parents and with people that don't believe we have agency), and not about medical gatekeeping. I think that self-diagnosis can be very valuable (with some caveats depending on what we're talking about) and that gatekeeping can be very harmful.

What do you think? Maybe @datatitian (group admin) can chime in? I was not going to tag the group in this post and later I decided to tag it, but I particularly want to hear from my followers and from autistic people that is not from the group.

Also is it possible that the issue is vastly different with different identities? That would explain a lot of the confusion.

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re: autism, gatekeeping, hashtags, long >1k 

@starsider @datatitian Personally I understand the tag to mean what you are saying, ie. people speaking from autistic experience, rather than "parents of" and such.

(I do have a formal diagnosis but I consider self-diagnosis legitimate and important)

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