I made a whole schedule for streaming on twitch and it was utterly ruined by unexpected screaming from my entire arm, both arms in fact, for no discernible reason. This kinda shit is why I can't work a normal job, bcuz I'll be half decent for a month or two and then my body parts start screeching like banshees for days or weeks and there's no schedule and nothing to be done about it cuz the drs don't care
#disabled #disabilitytwitter #DisabledFedi #BlackMastodon #BlackTwitter
I made an emergency appointment with my pcp yesterday after spending the whole day in such agony I could barely hold my phone and I am utterly astonished that he actually did something! Xrays, bloodwork ordered, and referrals to PT and pain management. That is the most concern for my pain that I've had in a decade. And of course he's leaving the practice so I'll havr to deal with some new chucklefuck later
#disabled #DisabledFedi #DisabilityTwitter #BlackTwitter #BlackMastodon
That still does nothing for my pain *today* though. A nigga won't ever find pain relief in a society that refuses proper healthcare, that demonizes opioids and substance use disorders, that sits toxic waste and highways over our neighborhoods, that believes we don't feel pain and which ascribes every deadly sin to us esp gluttony, lust and sloth, for the crime of existing while Black.
#DisabledFedi #DisabilityTwitter #BlackTwitter #BlackMastodon
And I'm tired of being poor and counting pennies for the crime of being Black and disabled. My phone is breaking down. I need more food. I won't be able to get these xrays and this bloodwork and see physical therapy and pain management because I don't have money to pay for transportation there. That's why I was even tryna get into streaming and praying people will buy my photos and show them to their friends so I can actually have some stability, just for my body and doctors to say fuck off
And I swear on my life if somebody hits that reply button to tell me about the wildly unreliable and unsafe "medical transport" available through my insurance I am going to go on a rant so intense that I'm gonna aim to get at least 30 people to block me. Those transport companies are a menace and frankly a violation of civil rights. They are worthless and I will not be betting my safety and medical appointments with chucklefucks that have stranded patients at drs offices and worse
@SingsongRaptor I'd like to hope after hearing that, nobody would be daft enough to suggest it. That's rough :/ I hope some money can go your way and soon, I'll see what I can do on my end because god if I don't know how debilitating chronic pain is myself
@elfi the bird app and the book of face have taught me that warning ppl not to dump garbage "advice" on me doesn't always work. Ppl think us disabled folks are stupid and have never had a thought in our lives or ever heard some simplistic asinine advice before. But you already know that, cuz I'm sure at least one jackass had asked you about turmeric, yoga and celery juice for your pain
@SingsongRaptor Ugh, yeah, the yoga one especially gets me too because it's contraindicated for EDS in particular. One of the reasons I avoid talking openly about my disability
@SingsongRaptor lmao autocorrect, agonies certainly works just as well there orz
I suppose Fedi is good for that though, at least for the time being!
@elfi i don't blame you, the only places I talk openly about my disability stuff is where I can surround myself with fellow agonies (autocorrect why lol that's supposed to say spoonies) and don't have to deal with some family member badgering me about sunlight and what I've been eating recently